Hey Guys Just got the most incredible hews It was so good I made a video . It was a very emotional moment. Please watch the video and then comment below the post. and then share, like tweet and pin it.
Uncategorized | 0 Comments »
My name is Adam Garcia. I am a close friend of the Blaes Family and Mike wanted me to post a message about what happened to Mandy last night.
It appears that Mandy had a seizure last night and has been admitted to the hospital for tests and observation. Please keep the Blaes Family in prayer, especially for Mandy’s healing, to give the Doctors wisdom, and the strength for the Blaes Family to get through this time of hardship. Please leave your public prayers and comments below.Uncategorized | 3 Comment »
I hope that you and yours are enjoying this holiday season.
Overall things are going well. Mandy just celebrated her third birthday, which is an amazing thing in itself. I can remember when we were unsure if Mandy would make it this far. She has surpassed all of ours and her doctor’s expectations. God has been incredibly good to us.
Still we are presented challenges, and we are going through one now.
Mandy was admitted into the hospital last night for stomach problems. She couldn’t keep anything down, not even Pedialyte. This is a dangerous condition, because she can easily dehydrate. So she was placed on IV fluids and is doing better. They have not restarted her feeds yet. The doctor told me that they were going to do some additional testing first to find out what kind of infection might be present. She will probably be there several days.
I cant say its fun, because frankly its not, especially since Mandy will not be home with us for Christmas. Frankly it sucks.
But God has his reasons, and I know that Mandy will recover. Please keep us in prayer in this time of trial, and I will keep you updated concerning Mandy’s condition.
Love in Christ,
PS. Please share your thoughts and prayers by clicking the comment link on this post. You have no idea how encouraging this is to us, especially during difficult times.Uncategorized | 0 Comments »
Hey Guys! Long time no talk!
Im not going to make excuses about why I haven’t posted in a while, like….
Ive been very busy with Mandy’s care even though it has
it sounds so much better than the dog ate my blog post do’n’t you think?
When Mandy had her first heart surgery, Teresa and I stayed in the hospital with her for about 3 weeks. Because of Mandy’s equipment, We were basically shoved into one tiny corner of her hospital room. The room’s walls were made of glass and there was always someone looking into the room watching Mandy’s vital signs. Doctors, nurses, technicians and other visitors would walk by and look in. After a while you feel like you are an animal in the zoo, <announcer “ And here we havePapa Blaes, Mama Blaes and Baby Blaes living in their natural habitat” or maybe not so natural :) We had no privacy. We had to dress and undress in the bathroom. It was a difficult experience. By the time Teresa and I went home we were basically shell shocked. As a result of that and Many other experiences with Mandy, I find that I value quiet and privacy much more than before. So Ive needed some time to recoup.
Mandy is doing great overall. She’s over 26 pounds now. She acts like a normal 2 year old for the most part. And now for the big development.
Mandy finally had her cleft palate repaired.
It took over 2 years of planning and hoping. There were a lot of issues that had to be overcome.
Mandy had to be in really good health, because this surgery was expected to set up her back some.
The surgery happened early October 21st The surgery took about 2 hours, and went off like Clockwork. Mandy was supposed to stay in the hospital overnight but was held over the weekend.
Here it is a week later and I am happy to report that she doing great! She has to wear arm restraints to keep her fingers and everything else out of her mouth. It’s quite a feat let me tell you. She hates having her arms confined. Tomorrow we are going to the see the plastic surgeon. Hopefully everything has healed correctly. I will let you know how it goes.
Thank You for Your Prayers and understanding I will do my best to try to post about once a month.
Love in Christ
P.S. Please let me know that you are out there by adding a comment below.Uncategorized | 1 Comment »
Happy New Year!
We wish you and yours a happy, healthy and prosperous new year. 2009 was a crazy time for us with lots of ups and downs
Mandy finally coming home and all of the adjustments we had to do to make this happen.
Mandy’s first eye surgery
Having to replace the tubes in her ears
Her victories over Pnuemonia and H1N1.
Losing one of Mandy’s grandmothers
Her Second Birthday – More on this later
Her first Christmas home
Her Second Eye surgery- I’ll tell you about this too
We have been through a lot, and if I had to catagorize 2009,I would call it the year of God’s faithfulness. It has been very difficult at times But there have been some really incredible events that remind us again and again that God has our back. Its no wonder that he says that he will never leave us nor forsake us
To catch you up, I will have to go back several months. In October, Mandy contracted both the H1N1 Flu virus and Pnuemonia. She ended up bing hospitalized. She came through with flying colors and recovered quickly.
Then November came along and tragedy struck. Mandy’s Grandma Robin, Teresa’s mom passed away. It was very sudden, and hit us very hard. I know Mandy didnt understand what was going on, but I could tell that it affected her. It was a very hard time for us. But we know for sure that Robin had acccepted Christ, and that she is in heaven. but we still miss her.
Rolling forward to December. That was a very eventful month for us. First, Mandy celebrated her second birthday. Grandma Laura and Grandpa Jerry flew in from New Mexico and spent several days with us. They had a blast with Mandy and spoiled her rotten, just like grandparents are supposed to. My favorite image was Mandy sitting in my Dad’s lap while he sang the same songs that I grew up on. That was an incredible treat. She got some really cool presents too including a playpen that her Grandpa Bryan gave her. You should see her sitting there playing with her toys.
Next came Christmas.
For the most part it was pretty quiet. We spent it at home and rested. But there was one really neat thing that happened. A couple of days before Someone knocked on our door. I opened the door and there was a man holding a huge basket of goodies. He asked me if we were the B’laes’;s and Handed me the basket and two big bags. One with a ham, cheese, rolls etc. The other held presents for Mandy. The thing is; I have no idea who sent them. I did not recognize the man and he refused to tell me . the packages were marked from Secret Santa. It was very special and I would like to thank whoever was responsible.
Finally came Mandy’s second surgery which happened on Wednesday December 30. Her eye doctor successfully removed the cattarct from her right eye. He was expecting some difficulty because of the size of the eye. However everything went off like clockwork. This included transportation, timing, waiting room, pre-op, everything. I remember we went outside to wait for the cab and had a quick bite to eat. We finished our lunch, and the cab pulled up. Sometimes we end up waitng an hour or more. It couldn’t have gone any better. i can just see God up there tweaking events just to remind us how special we are to him.
This brings us up to the present. Mandy is recovering nicely, experiencing some pain. Yet she is still the happy little girl that never ceases to amaze me. I actually saw her sitting up in her crib on her own for the first time tonight!
I realize that you have missed out on some of this journey and I am truly sorry for that. It has been hard to keep up with all of the postings along with Mandy’s care and trying to keep things going. So with this being New years day, I have decided to turn over a new leaf and start a new years resolution. I will do my best to post every week and let you know how Mandy is doing. I will also try to shoot one video per month as well. Expect the new post on Sunday.
I know this has been a long post and I thank you for taking the time to read it. Mandy’s story has been an incredible adventure for us and I enjoy sharing it with you. It shows how our Heavenly Father cares for us, even the small things. He has brought us through many things and I’m sure that there is more coming. Yet he is still faithful. If you are going through a difficult time, talk to God and let him help you. I know from first-hand experience he will not let you down.
Love in Christ,
Michael, Teresa and Mandy
PS. Please share your thoughts by clicking the comment link below
PPS If you want to be notified when there is a new post, fill out the form on the side of this page and cllick the link in the email you will sent and you will recieve an email each time I post.Uncategorized | 0 Comments »
It has been crazy busy here in Mandy land, thus the lack of updates. I’m not going to make any excuses; I will just do better. I commit to write one update per week, which should be released on Sunday.
Mandy is doing pretty well. She is growing like crazy. She is now up to 19.8 pounds. She has not gotten sick, which is amazing considering that both Teresa and I have been very sick. It took us over two weeks to finally get over it. We have done everything possible to keep her well, washing hands often, controlling coughs etc, but it hasn’t been easy. It is a miracle for sure.
So she acts like any other 2 year old. She chews on everything in sight, plays with her toys and cries when she is wet or wants be held which is often. :) There is nothing as cool as holding your daughter. There is so much peace, and I wouldn’t trade it for all the money in the world. Even with poop, vomit and mucus, and waking up in the middle of the night to suction her, it is worth it.
One really cute/ slightly annoying thing is she likes to chew on her feeding tube. Just tonight, I checked on her and found her soaking wet and her bed covered with formula. Sure enough she had either pulled or chewed off the feeding tube. Oh well it all comes out in the wash.
So coming up on our very busy calendar, is an MRI on Tuesday October 20, for the purpose of checking to see if she is going to need surgery on her head to move the plates where they belong. They overlap slightly. They will have to put her under Anesthesia to accomplish this.
So please pray that this procedure goes well and that there are no side effects. Also lift up our finances and the eye surgery that Teresa will be having in a few weeks. I will share more on that later.
Love in Christ
PS Please let me you are still out there by commenting on the blog below. Also join our mailing list to ensure that you receive the updates which I promise will be more often.Uncategorized | 0 Comments »
It’s been a busy time in Mandy Land. She caught a bug over the weekend, so we have been doing 24 hour care, keeping her fever under control etc. I haven’t gotten a lot of rest as a result. All that being said, here is the latest
Thursday was a grueling day for us. We had 3 doctor’s appointment in the same day. Fortunately they were all in the same building. ? Anyway We saw Gastro, Respiratory, and her pediatrician.
All had pretty much clean bills of health for Mandy. She was a little gunky, needing to be suctioned frequently. Then Friday morning she started to run a fever and was absolutely miserable. Nothing would console her. We held her for hours, and finally she fell asleep.
It is absolutely true what they say about sleep. It is the best way to fight and recover from illness. This is especially true in Mandy’s case. After she woke up, she was a new kid again.
But we are not out of the woods. She is still not at 100% yet. Please pray for her to finish getting better.
Love in Christ,
PS. Please share your thoughts by clicking the comment link belowUncategorized | 0 Comments »
Hi Guys, At 8:00 Tomorrow, Mandy will be having surgery tomorrow on her eyes. The doctor wants to do a full examination to see if they can repair her Cataracts. He will also clear her tear duct as well. I’m not really that concerned with it, Mandy has done very well under anesthesia in the past. But there is always a risk.
Thanks for your prayers,
PS. Please share your thoughts by clicking the comment link below.Uncategorized | 0 Comments »
I have a couple of major updates. Fasten your seatbelts and keep your hands inside the ride at all times. Sorry just had to set the scene….
Mandy is doing great. She is gaining weight now steadily. She is about 19 pounds now. When I think of where she has come from, I just want to hit my knees and just praise God. In fact sometimes I do. ? She has now been home almost 4 months now and for the most part things are going very well. Teresa and I are having a blast watching her grow. I love playing with her, especially tickling her and watching her giggle. All I can say at this point is Praise You Lord!
There have been some trials. Mandy can catch a bug so easily, because of the open Trach, so that is a constant challenge. Recently she came down with some kind respiratory infection. It took us over two weeks to get her well. Because of this we are limiting her exposure to doctor appointments and tests, along with short walks. We are not taking her to church at this point, which is a little frustrating. It’s hard to get the feeding you need when you aren’t attending as regularly as we would like to. All that being said, God is good, and he is still on the throne.
One really cool thing that happened is Mandy has been taken off of her heart medicine, and the Doctor doesn’t want to see her for a year. Wow! How Cool is That? Another prayer answered. I asked him if he thought she would need any more heart surgery in the foreseeable future, and he clearly said “I don’t think so”
Next Mandy will be having eye surgery on the 8th of July to determine what can be done with her vision. We know that she can see some, are not sure exactly how much. We had an numberswiki.com
ultrasound done and found that her eyes are not detached as was originally feared by her eye doctor.
Next Mandy saw a whole bunch of doctors about a week ago and they are collaborating to determine what can be done with her cleft palate. We are hoping that it can be repaired, but there are many questions still to be answered. I learned early on to stop asking the question “When?” and start asking “Whats next”
Finally The doctors are concerned about the growth of the plates on her skull. Her soft spot is still exposed and from what I am understanding, it should have grown in. So the team will be addressing that as well. It might involve some plastic surgery to repair. I’ll keep you updated as things develop.
Oh I almost forgot! One last update. We are moving! As you can probably imagine, a one bedroom apartment gets a little crowded with 3 people. Add to that all of the staff that works with Mandy and it gets pretty crazy. Teresa and I work from home, and it has hard to be productive with all of the noise and distractions. So we requested a 2 bedroom apartment from the complex and were 4 down on the waiting list, and our number finally came up. So we will be relocating at the end of this week. I’m pretty excited. We will have more room and have some private space for ourselves too. Praise God!
Please pray for Mandy’s safety on the 8th, and that God would guide the doctor’s hands. Also pray for wisdom for the team that is making the decision about Mandy’s cleft palate and skull issues. Also for wisdom and grace for us so that the move goes smoothly.
Love in Christ
PS. As always, please share your thoughts by clicking the comment link below. We appreciate your feedback, and I cannot count the number of times that God has used you to restore us and give us peace.Uncategorized | 0 Comments »
It has been a crazy week. Mandy caught a bug, and has been sick all week. She’s been running a fever off on and on all week. But after several days of antibiotics and lots of love she is finally feeling better. She is moving around again. She pretty much slept all week.
It’s really hard to sleep when you know your little one is not feeling well. You feel like you are on alert, waiting for something to happen. How so like our heavenly father. The bible says he watches over us.
Life is precious, and we are not even promised our next breath. We have to just rest in him and know that he has everything more info
Now that Mandy is feeling better, I expect a relatively quiet week. She has one follow-up appointment with her Pediatrician, and not much else. I’ll give you all an update next week on how she is doing. I’ve been working on some new videos and I will try to have those up soon as well.
Thank you for your prayers!
Love in Christ
PS. Please share your thoughts by clicking the comment link below.
PPS. If you aren’t receiving the updates from Mandy’s Story fill out the form on the side of this page. You will receive an email from firstname.lastname@example.org click the link in the email and you will be notified every time I add a new update.Uncategorized | 0 Comments »