A Night with Mandy

Hi Everyone,

I have another quick update. Mandy is doing really well. She is growing, wiggling, moving, crying etc just like normal baby does. I love saying that. There for a while it was touch and go. Many of our supporters around us were trying to prepare us for the worst, while hoping for the best. But when you are a follower of Christ, surrendered to his lordship, how can you possibly lose. We made the choice early on to totally give Mandy’s life and care over to God, and to take our hands off completely. It was easier than I expected. There is something about resting in your creator’s arms know that regardless of what is going to happen. He has everything under control and is working it all out for your good and his glory. I repeat, when you are in that position how can you possibly lose. Im reminded of one of my favorite scriptures.

All things work together for good to those who love the Lord and are called according to his purpose. Rom 8:28

So what our adversary means for evil and our destruction, God will turn the situation for our good. Glory to God! Thank You Jesus!

Forgive me for getting a little preachy. My heart is just overflowing with love for my heavenly father.

We spent a couple of hours at the hospital last night, working with Mandy. I changed her diaper, checked her temperature and cleaned the area around her G-Tube. I held her for a little bit until she started crying. I heard a little congestion, so I suctioned her, but she wouldn’t settle down., Then we realized that she was hungry, just like a normal baby, even though she doesn’t eat by mouth. We set up her feed, and she settled down and fell fast asleep.

You may be saying to yourself “Duh” but you have to understand that for most of her life she was fed through an IV or Nasal Gastric Tube. Most of the time she was heavily sedated, so we didn’t get to see her reaction. She just lay there and pooped, and slept. So it is so cool to see her express her needs. I learned some new things last night as well, including how to give her medication through the G-Tube.

Here are the plans for the next couple of weeks. Mandy has 3 Doctor’s appointments, and if everything goes well, she will be transferred to the long term care facility on the 23^rd. It will take a few weeks to get all of the resources in place, including home nursing, respite, etc. After that she will come home. I’m glad we have some more time to work with her, learn the skills that we need to know to take care of her, and get things ready here at the house. We have most of what we need, We just have to get it organized a little better.

Thanks for all the prayers,

Love in Christ
Michael and Teresa Blaes

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